Michael's Cause Day
Dear PS 3 staff and families,
PS 3 and Michael's Cause will be having their 4th Annual Michael's Cause, Duchenne Muscular Dystrophy awareness day on Friday, May 26, 2017. I am asking for your help to save my son’s life. My son Michael Capolongo is a 5th grade student at PS3. He was diagnosed with Duchenne Muscular Dystrophy in 2010. Duchenne is the number one fatal genetic childhood disorder worldwide. Duchenne effects 1 out of 3500 boys. The average life span of a child with this condition is the mid 20’s and this is only after his muscles fail him and leave him wheelchair bound by age 12. Michael just turned 11 on May 20th. His body is not making a protein called dystrophin which acts as a shock absorber to the muscle cells and keeps them from breaking down. Science and medicine have come a long way over the past 10 years, however there is no cure for Duchenne to date. We are in a fight against time!
It has been extremely difficult to imagine that our son will lose his independence, never dance at his first dance, play sports like all the other kids or even be able to give me a hug one day if we do not find a cure. Our only course of action is to raise as much awareness and funding for Duchenne research in order to find a cure in time to save Michael and all the other boys who have this devastating disorder. The doctors and scientists who are working towards a cure lack the funds necessary to succeed. My husband and I started Michael's Cause in 2011, which is a non-profit public charity in order to help the doctors achieve this goal.
Michael’s Cause has two large events, a dinner dance gala in the spring and a 5K run and walk in the fall along with other smaller events to raise awareness. Our first goal is to provide Duchenne Muscular Dystrophy awareness and secondly, to raise as much funding as we can for research to find a cure. Since the inception of Michael's Cause we have raised over one million dollars and already funded $950,000.00 toward the best possible research. We will not give up until a cure is found and we ask for your support in helping us reach our goal. No donation is too small and a donation of $5 sent in for Michael's cause will award you a drawstring backpack that will spread awareness when you use it! Please wear royal blue or blue on May 26th in recognition of Duchenne Muscular Dystrophy. The money raised on May 26th will be directed in full to a very promising research project that will help all of the boys with this disease.
I thank you in advance for any support you can provide to Michael's Cause and ask that you help spread awareness in any way you can.
Co-Founder and Michael's Mom